LifeAfterDx--The Guardian Chronicles

A internet journal from one of the first T1 Diabetics to use the Guardian RT continuous glucose monitor.

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Name: Wil
Location: New Mexico, United States

My name is William (a.k.a. “Lee,” which is short for Liam, which in turn is short for William), although a lot of you probably only know me by my diabetes screen name of Printcrafter. I’m a forty-four-year-old T-1 diabetic. An ex-pumper. A father to five-year-old Rio and husband to Debbie. I’ve got several interesting jobs. For years my wife and I have run a small custom photo lab and a photography studio. I also happen to be the Diabetes Coordinator for a community health center in Northern New Mexico, which is a very, very, very cool job. I suffer from impaired hypoglycemia awareness; which means I can’t feel my hypos. Scary stuff. I’ve been as low as 35 without a whisper of a symptom. That lead me to CGM. I wore one of the first Guardian RT units, chronicled in this blog. Now I’ve got new things to talk about. A new Guardian Real-Time, diabetes technology and politics, and the continuing adventures of five-year-old Rio.

Tuesday, April 08, 2008

Rebels like me

The windowless basement room is filled with smoke. My pipe is clenched in my teeth. A bead of sweat trickles down my temple. I can barley make out Fidel through the blue-gray haze. He sits across the green felt table from me, hat pulled down over his eyes, a pile of red and white chips in front of him. He’s chewing on the butt of his cigar.

“Come on, deal the cards already,” snaps Lech curtly, stubbing out a cigarette. Dr. Joslin cuts the deck and rapidly flips cards out to the players; except for Che, who’s already passed out from to much tequila. Mohandas yawns briefly and picks up his first card. Thomas scratches his ear. I get the feeling he’d rather be writing than playing poker with the rest of us Revolutionaries.

Dr. J finishes the deal. I pick my cards up and unfold them in front of me, holding the hand close to my chest.

Ace of spades, ace of clubs, two black eights, and the queen of diamonds. Hmmmm….. something familiar and ominous about this hand…..

I’m sure that back when I was a Cub Scout my Mother never expected me to be a revolutionary. Neither did I. But desperate times call for desperate measures, and for us D-folk the desperate times are about to get a whole lot more desperate. There are dark clouds on the horizon. A storm is coming, and it could well sweep us all away.

High in corporate towers the lawyers for the insurance companies and the Doctors who have sold their souls to the devil for dollars are cooking up a new black magic. Behold the lowly test strip: now you see it. Now you don’t.

Like most shocks I receive, this one started innocently enough… My problem was pretty simple: I get free test strips for poor diabetics from the state; but I have too many diabetics. My allotment of free strips for the needy is based on the clinic having 50 diabetes patients. The problem is I have 200. Oh, right, I forgot, I got 50 boxes of strips per quarter before the budget got cut. Now I get 36 boxes of Abbott Precision X-tra strips per quarter-year for a thousand square mile area. Lovely.

I can’t even split the boxes up. P-Xtra meters use a calibrator strip. Each box has only one calibrator. I tried giving out half-boxes and making patients sign an affidavit in blood stating that they would return the calibrator once their meter was ready. No luck.

About two weeks ago we ran out of strips. To be honest, I was so out to lunch I didn’t even know we were low until the mob showed up at my office with pitchforks and flaming torches. I knew I had to do something quickly.

I called everyone I know. Solutions were few and far between. Conversations went something like this:

Me: Hey, its Wil over at Valley. How ya doin?

Colleague at neighboring health center: Overworked, underpaid. You?

Me: You know me, I love my job... but we’re having a test strip problem over here.

Colleague: Welcome to the club.

Me: Yeah, we’re out. Totally. Ideas?

Colleague: How big is your budget?

Me: Ummmmmmm….I think I’m allowed to buy two pens and one Band-Aid this year.

Colleague: You’re screwed.

After about a dozen of these conversations, I had a good cry, a stiff drink, and then I thought to call my Primary Care Physician. She actually had a possible solution for me. She’d found a source for “affordable” test strips.

I called the outfit and told them the sad tale of my rag-tag band of diabetics living in tents in the freezing weather of the current economy. And they made me a pretty good deal. As we are a non-profit we could have test strips for $9.50 per box of 50; plus shipping of course. That put them right at twenty cents a strip, which is actually moderately affordable, an 80% discount off of name-brand strips, and roughly equivalent to the amount most insured diabetics shell out in co-pays.

The catch?

I had to buy 100 boxes at a time. They would give me 16 meters free for every 100 boxes I bought. Problem was I knew we’d need a lot more meters right out of the gate to start switching people over. I told them I needed 50 meters and reminded them about the starving children of diabetics who were pan-handling on the street at that very moment. (I actually got hired here after sitting in front of the clinic for three months with a “Will work for test strips” sign around my neck.)

We’ll get back to you, was their answer.

Tick-tock…

Tick-tock…

Tick-tock…

Tick-tock…

Boop! (sound of email arriving) Hot Russian women are waiting for you! How does this shit get though the clinic’s spam filters?

Tick-tock…

Tick-tock…

Tick-tock…

Tick-tock…

Boop! An answer! Five bucks a meter. I’m good to go. I just need to come up with a little over a thousand bucks to make this deal happen. Hey, J, what’s the current street price of Lortabs? What? No. No, of course I’m not serious. Damn this moral compass!

So I go to my boss to convince her to find over a grand from some other department’s budget. My argument: it isn’t really a loan as much as an endowment. If we sell the strips at cost, every box we sell gives us the money to buy a replacement box. It is more like a one-time capital expense than an inventory.

“Wait a minute,” interjected the clinic’s executive director mid-pitch, “you’re telling me these little plastic strips cost a dollar? That’s criminal! How much could they possibly cost to make? A penny? Half a penny?”

Her blood pressure up, her moral outrage up, and her sense of basic patient rights insulted; she proceeded to start rattling off a list of people I should call, email, and write to. Yeah, right, I thought to myself, I’ll get right on that in all my spare time. My eyes must have glazed over because she stopped in mid-sentence and studied me carefully. “Oh never mind, I’ll do it myself! Just get me the facts and double-check the letter when I’m done.”

OK, if you want to spit into a gale….

And the test strips? Our medical director was called in and the decision was made to add the ten-buck strips to our pharmacy’s formulary. Now, just like Z-pack, lyvoxil, and metformin; test strips are now always stocked. Always available. Always 10 bucks. That helped my people. But not everyone else.

My boss wrote the letter. Then I emailed it to every one under the sun. Various colleagues and assorted power-brokers emailed back: “Yeah. Sucks. What’ya gonna do?”

Then our regional ADA advocacy director emailed. The problem was MUCH larger than I had even known. She told me that her office has been flooded with complaints that insurance companies are re-classifying test strips as Durable Medical Equipment. What the fuck is durable about a test strip, for crying out loud! Why would they do that? Well, DME coverage is usually at 50% on most policies. Now, instead of a med co-pay, diabetic patients are all of the sudden asked to pony up half the cost of the strips at retail.

Oh yeah. And on top of that, you have to reach your deductible before they will pay their half. Oh yeah. And on top of that, some polices have a separate DME deductible above and beyond the policy’s basic deductible. This is the black-magic I was talking about at the beginning of the post.

Boy was I pissed. I didn’t know what I was going to do, but I had to do something. My little band of our tribe is OK: for now. But this was a basic assault on the health and well-being of my entire kind.

Not knowing what else to do, I started by emailing Amy at DiabetesMine.

I didn’t hear from her for a day or two. Rio is on spring break (so no school runs). I took the week off, locked myself in the library, turned off the DSL modem—no point in tempting one’s self—and starting hammering out the first draft of one of the D books I’ve been promising everyone I’d write for months, and months, and months.

Yesterday evening I booted up and I had mail. Boy did I have mail. Amy posted about me. There’s the picture of one-quarter of my face that was the first photo Rio took under the headline “Local Heroes.” Holy crap!

I guess I’d better go to eBay and buy myself a cape. And maybe a heroic pipe.

All the emails boiled down to the same message: Read about you on Amy’s blog. I think it is awesome what you are doing. How can I help? Well, all except that email from my buddy Kerri over at SixUntilMe; who jokingly called me a Diabetes whack-a-mole for my propensity to pop up for a while, disappear for a while, and then show up again. Guilty as charged with extenuating circumstances. I am a DWAM; but just ‘cause you don’t see me on the internet doesn’t mean I’m not doing something for us D-folk somewhere else!

So last night I went to bed thinking: all these people want to help. This could be the start of a movement. What to do with all this energy? How can we make a statement that will make the rest of the world understand how critical this is?

As I tossed and turned, unable to sleep, part of an idea came to me. A vision formed in my head. A dollar bill with a test strip taped to it. A dollar bill with a test strip taped to it and a sticky note that says “I pay one dollar per strip. I need six strips a day to stay healthy and in control of my diabetes. Can you spare me two grand?”

I pictured hundreds, thousands, tens of thousands of envelopes piling up on someone’s desk. But whose desk? Who can help us?

If we send our dollars to the test strip makers they’ll have a good laugh and take our money and buy hookers and crack cocaine with it.

If we send them to politicians, once again, we’ll be getting thank you cards from the Hooker’s Union and the Columbian Cartels.

The American Diabetes Association comes to mind, but…. well it is no secret how I feel about them. In case you are a new reader, I feel they are more interested in razing, er, raising money from patients than helping patients. All they do in our state is sell T-shirts and host money-raising diabetes walks. They don’t help individual patients. They don’t have support groups. They don’t help at all. But still, they are good when it comes to things that require money, guns, and lawyers. Especially lawyers.

If we sent our protest to ADA, at least after our point was made and publicized the dollars would go to a more-or-less good cause.

So, fellow rebels with a cause. Check in via comments. Do like the basic idea? Who do you think we should burry in test strips and dollar bills?

Oh…and this poker hand doesn’t look too good and my back is to the door…

Thursday, April 03, 2008

The Mix mix-up

Confession: I wrote this a little while back; but was never quite happy with it. I’m still not quite happy with it, but on my second glass of cabernet sauvignon I’m thinking it doesn’t suck all that badly…. so I decided to post it. My inner man has been missing the writing and I’m feeling called to start posting. I have things to talk about again.



In the beginning there was death.

Then insulin was discovered. First it came from various animals: it was crude, brown, unpredictable. But heaps better than death.

Next came a long line of “improvements” to insulin. Each generation better. Each generation more expensive.

Now we live thanks to the black-magic preformed in Big Pharma’s factories. God-only-knows-what goes in on one side of the factory; and liquid gold for the stock-holders comes out the other.

But a few steps down the evolutionary ladder from where we cling to life today, in the days before 24-hour basal insulins like Lantus and Levemir, there was an insulin called NPH. It had a medium-range duration of action and was often used to get us through the night alive. At some point it was “mixed” with fast-acting to reduce the number of shots we had to take in a day.

Recently, for reasons totally unclear to me as mix is rarely prescribed anymore, Lilly created a new 50/50 mix. It is half fast-acting and half NPHish insulin. It seemed like an unlikely product when my Lilly Rep dropped off a few pens at the clinic. They languished in my fridge for months.

Then, as some of you know, a change of insurance cost me my life as a pumper. Back to taking multiple daily shots I got to thinking about Mix. I wondered if it might work as a poor-man’s combo bolus. A combo bolus (dual wave to you Med-T speakers) is a pump bolus for a carb load followed by increased basal pumping for a period of time. Works great for pizza and other complex foods that have a carb spike followed by a long duration digestive element. (Read high fat, in general).

So I was thinking that the 50% fast might cover the sugars in the pizza crust and sauce; and the NPH might help knock down the secondary spike brought on by the meats, cheeses, etc. I brought a pen home and downloaded the volumes of fine print available on the product from Lilly’s web site.

The fine print convinced me that my idea wasn’t too good after all. I had it in my head, wrongly, that NPH lasted 4-6 hours. Nope. Much longer. I shelved the idea and now the 50/50 pen languished in my fridge in my office at the Lab, rather than languishing in my fridge in my office at the clinic. I actually forgot it was even there.

We took a trip up to Denver last week. I packed frantically after my 12.5 hour clinic day and at the last minute I realized my Humalog Turbo was almost empty. I grabbed a fresh Grey & White on our way down the driveway.

Two days later I was down to 20 units of Humalog. I took out the spare pen to put a pen needle on it before heading out to the aquarium with Rio and his God-parents, who were visiting from Jersey. I uncapped the pen to find the insulin foggy, cloudy, white. What the fuck?

It had been so long since I’d seen NPH I’d forgotten what it looked like. At first I was trying to figure out what catastrophe had wiped out my insulin! Then, with a sinking feeling, it dawned on me. I took the wrong pen from the fridge. In my hand I was holding a 50/50 Mix pen. Far from home. On a weekend.

We’d just bought a big box of Einstein Brother’s Bagels (I think I’ve mentioned before that I’m a piss-poor role model). If I use the fast-acting I have left, I won’t make it back home. Damn if I’m going to pay $175 for Humalog at retail even if I can convince a pharmacy on a Saturday to give me some without a script. Besides, even if I tried to, the credit card machine would explode in my face when I swiped my debit card. I’m in Denver with $5.12 in my bank account back home. I resolve to give the mix a try, what’s the worst that can happen?

We all know that Death rides a pale horse. It turns out that the Hypo Reaper rides a grey and white one, as does his girl-cousin the Hyper Reaper; and as you will soon see, they will both visit me within the next 24 hours.

Back to the bagels. Ever had an Einstein Brother’s bagel? Like potato chips, you can’t eat just one. I take 10 units. Soon my day becomes….. sub-optimum.

My blood sugar shoots up to over 300 in an hour. Crap. Then, hours down stream, the drop begins. And it’s bad. The most aggressive hypo I’ve seen since…. Well since I use to use NPH, as a matter of fact. I just could not turn the fucker around. I kept upping the carb ante every fifteen minutes and every fifteen minutes the BGL was lower. In the low 50s I was beginning to get…. Concerned.

Oh screw that, I was scared out of my pants.

It is a long story involving cell phones, a rendezvous in a parking lot, and getting the kid safely to where he couldn’t see what was going on. Sorry, but I see no point in giving myself a post-traumatic stress attack relating it, but I owe a debt of gratitude to the Dole Juice Company for their fine carb-packed Pineapple Juice product. After ingesting something in the order of 200 carbs I got back up to 130, where upon I crashed again. It was a thoroughly rotten day, and by the end of it I felt like the LAPD had beat the crap out of me.

It also shook up the wife, the kid, and my mother—none of whom have ever bothered to really learn anything about diabetes, don’t understand it, and have deluded themselves into thinking I’m really healthier than I am. Right after the discovery of insulin one of the early diabetes Docs called us the “erstwhile dead.” And that is true, we are really zombies kept alive only by the magic of these pricy chemicals.

The next day was the drive home. I thought I had enough Humalog left to cover the one meal on the trip. I was wrong. Tricky to properly guess the last dredges in those throw-away pens.

Then a crazy idea struck me. Mix really isn’t a mix at all. NPH and regular really don’t mix all that well. There is a whole ritual you have to got through rolling and flipping the pen to make it happily homogenous before you shoot up. I set the pen on end and let the heavy white NPH settle to the bottom. Ahhhhh…. Did I have pure Humalog on the top? I injected upside down and was very proud of myself.

Until the shit hit the fan.

180.

210.

244.

342.

More clear fluid from the pen top.

403.

456.

498.

This is not looking good for the home team. We are now in the waste lands of northern New Mexico on a Sunday night. BGL now 507.

In hind sight, the thick layer of NPH only took up a quarter inch in the bottom of the pen. I’m not really sure the rest was insulin. It could be distilled water at the top for all I know, and it sure acted like it. (I later learn that Mix pens contain free and suspended fast-acting insulin, mixed in with a good deal of inert filler fluid.)

As the sun sets and long shadows race across the barren prairie, I discover my blood ketone test strips expired in July. Crap. My stomach is turning summersaults. Stress or ketones? Hmmmm…. Hard to say. I’ve been in dangerous territory for five hours by the time we get home.

I grab a Humalog pen as soon as we get to the top of the driveway, making sure it IS a Humalog pen. They should really make the mix pens some other color for crying out loud.

I don’t want to screw around with a sub-q shot. I want IM, straight into the muscle, a much faster way to bring a hyper down. An IV shot would be even faster, but I’ve never done one on myself. Every frickin heroin addict can do it, but I don’t have a clue. Something we should teach in diabetes boot camp, huh?

Pen needles are too short to reach muscle even in a spaghetti-armed skinny like me. After some frantic searching I find an old-fashioned syringe. Needle isn’t as long as I’d like, but should do. I have Deb pinch up my deltoid to get the muscle as close to the surface of the skin as possible. I stab the needle in, pushing as deep as I can. It hurts like hell, a good sign we hit our target. I start to inject 10 units, but we have a miscommunication and she lets go of my arm early. The needle slips out and we have no way of knowing how much juice hit the target.

There is nothing to do. If most of the insulin went into the muscle a second shot would be…. Bad. If most of it when into the fat it will work…. At some point. If I don’t go DKA first.

For the next 20 minutes the BGL continues to drift upwards. I re-program a Precision Extra meter, lying to it about the date so I can use the expired ketone strip. It shows negative for ketones but with a strip a half-year out-of-date, I don’t know if I can trust the result.

Then slowly at first, then faster, faster, faster, faster my blood sugar begins to drop. To plummet. I lose 100 points in 15 minutes. My body is racked with terrible cramps. My arms turn to granite. My toes seize up with incredible pain. I frantically rub in aspercream, down valiums, and pray I don’t go hypo.

I stay up as long as my exhausted and excursion battered body can stand it. 3.5 hours down stream of the IM shot Guardian shows as solid level-out in the low 170s. A finger stick shows that it is actually in the mid-200s; but I trust the trend. The mind-numbing drop has stopped. The IM shot was a good call, though not easy on the body. I’m back in safe territory.

I take two more units sub-q, take my basal and collapse into bed; hoping to wake up in the morning but too damn tired to care one way or the other.

Thursday, January 10, 2008

A good day

It was long over-due; but I had a good day yesterday.

“Vacation” was over Monday, but my first two days back at the clinic sucked. The heavy snow and howling wind didn’t help my mood either. But yesterday was a different story.

First of all I was swamped, always a good thing for me. If I’m focusing on other people’s troubles I don’t have time to feel sorry for myself. I also like a busy day. I actually have more energy on a busy day. Nothing wears me out more than a day with too much time on my hands.

It was pretty much back-to-back patients yesterday, with a couple of walk in pseudo-emergencies to add flavor to the day. My building was also half full of crying babies and a constant babble of Spanish. It was WIC day (Women, Infants, and Children). I host a visit from the WIC program once per month. They help low-income women with groceries and education. Between patients I can slip out of my office and play with the babies and toddlers.

It was also a day where three patients came in to report that their blood sugars were “totally whacked.” This has lead to a new diagnosis: CWBG, short for Clinically Whacked Blood Glucose, which is characterized by crazy and vexing variations in BGL.

It was good exercise for my brain. I do like a good mystery. I do like solving difficult puzzles (so long as they aren’t jig-saw puzzles which I absolutely hate!).

Anyway, since about Thanksgiving I’ve been dealing with high cancellation and no-show rates. Too much time in the office with nothing useful to do. I was beginning to feel worthless; and even though I’m not paid much, I was beginning to feel the clinic was wasting their money to pay me to sit in my office and feel sorry for myself.

My poor guilt-ridden patients just didn’t want to come in with cookie crumbs on their chins during the Carbmass season. But they are back now, and I assured them that I had been every bit as “bad” as they had been. (Had they come they’d have seen the brownie crumbs on my keyboard.) Oh well, I guess my false image as a role model is intact. Next December I going to beg Doctors without Borders to send me to Algeria or somewhere warm where I can actually be of use for the month.

But yesterday I had numerous opportunities to practice some good medicine. To make a difference. To make people feel and be better. I felt like I had a purpose once again.

It was a very good day.

Saturday, January 05, 2008

A note from a very dark space

The email read: Happy New Year, Wil! Here’s hoping yours is happy, healthy, and prosperous.

It has been none of the above. My ribs are cracked so it hurts every time I breathe. I have a three inch laceration across my left palm. I’m left handed, of course. I can’t just lie in bed ‘cause I got a head cold and I’m more miserable lying down than standing. No, I didn’t survive a plane crash or get attacked by sharks while swimming the great barrier reef. I should be so lucky.

No. These are vacation-induced home-improvement project injuries. Except the cold, and no, sadly I didn’t catch that cavorting with hookers. I got it from my wife’s little cousins at the family Christmas party.

And of course the carb-saturated environment of Christmas, along with my notorious lack of self-control have had the expected effect on my blood sugar.

Not a healthy New Year.

Neither is it prosperous. After selling everything of value that I still own on eBay in a three week marathon, I sat down to update the check book; where upon I discovered that the fucking post office had cleaned me out. Deb had been taking the dozens of packages to them for shipping. I had charged shipping to cover parcel post. The post office told Deb that Priority Mail was basically the same price.

Yeah. Right.

Not if the box is of any size at all.

Item sells for 35 dollars. I charge 10 for shipping. Post Office charges 78 to ship it. I have effectively paid 33 dollars for someone to take this item off my hands. More actually, once eBay hits me for listing it and takes their “final value” fee. Let’s not forget PayPal. They take a cut too.

It was a finical blood bath. We lost money on all most all the small stuff we sold. What about the big stuff? Well, that is a series of tragedies that still makes me too sick to talk about it, but involves shipping damage, credit card fraud, and at least one psychopath who has bombarded with bile-filled e-mails and crazy demands. And those are all separate incidents, by the way. At least I look very scholarly with all this grey hair in my beard.

On top of all of that, under the delusion we had money again, I was re-disturbing a percentage of our wealth on eBay while Deb was doing the same at Wal-Mart. When the smoke cleared we were broke and in debt to our necks again; but now with less stuff than before.

Not a prosperous New Year.

Which leaves me with happiness. Even without all the stress and crap listed above I started the end of the year in a dark space and I have stayed there. I can’t even tell you why, but I doubt I’ve ever been so depressed.

Maybe the lack of money and the fact that I’ll never earn a decent paycheck at the clinic ‘cause I don’t have the right letters after my name.

Maybe the complete lack of intimacy in my life.

Maybe because I spent the vacation downsizing my life’s work. After almost 20 years in the lab businesses it is now clear this will end badly. I moved remaining bits a pieces of equipment from four three-quarters-empty-rooms into one large one. It’ll be nice in the long run, but it was emotionally tough and stirred up lots of emotions I didn’t even know I had. Made it clear just how much I’ve lost in the last six years; and not just money, either.

Maybe because of this diabetes thing. You know I have diabetes, right?

Maybe because my insurance is so bad I’m pumpless and it doesn’t look good for the CGM once the current sensors are used up. A mixed blessing, I’ve had a lot of really crappy sensors lately. Looks like MedT is having trouble up-scaling production while keep a hold of quality.

Maybe….

Or…

And…

Well, just… Not a Happy New Year.

Sunday, November 25, 2007

Life, the Universe, and Everything….

…is too damn much sometimes.

So I’m still overworked. And depressed. And Thanksgiving, as expected, totally wrecked my BG control.

I’ve had good luck selling everything I own on eBay to buy drugs; sadly, not the recreational kind. But, boy, it’s a lot of work. Shooting pictures, writing descriptions (which I find to be a lot like blogging, actually), and answering the swarm of questions that come in on each one. How much to ship to Paraguay? To France? To China? To (fill in the blank). Is it really black? How many inches wide is it? Will you take half of the minimum bid and give me free shipping? No. Go to....

I’m exhausted. Totally. But I also know this pre-Christmas season is the best time to sell. So I gotta do it.

Finial decision: I’m going to take a break from blogging. Not a vacation. More of a sabbatical. And just for a little while. I’ll still post as things come up I need to share; but not everyday. Not for a while.

Love you all, see you again before too much time passes.

Friday, November 16, 2007

A telegram from the trenches

GUARDIAN READS QUOTE ABOVE 400 END QUOTE STOP VICITM OF CHOCOLATE PEPPERMINT MILK SHAKE AT ZIA DINER SANTA FE STOP SEND INSULIN STOP

:-)

See you all next week.

Thursday, November 15, 2007

They came, they saw, they conquered

Young and old. Men, women, children. The D-Folk and their loved ones.

They came.

As a group we set out, the pace matched to the slowest of our number. Some with canes. Some with walkers. One in a wheel chair and one in a stroller.

We walked. The strong supporting the weak.





It was a beautiful day for a walk. Especially this walk.

I had a happy D-day. I hope you did too.

Wednesday, November 14, 2007

Happy WD-Day

I guess this is our First Birthday as a world power! Happy World Diabetes Day everyone. What? You have nothing to be happy about? Hmmmm… look deep inside, this curse gives all of us a silver lining. If you haven’t found it yet, look harder.

Meantime, I’m off to our “celebration” at the local National Park. The team and I put together a nice little event. Not exactly lighting the Eiffel Tower with blue lights, but my budget is pretty limited.

We’re going to have a group health walk around the grounds. We’ve got some give-always. We met with the owners of all the local restaurants, reviewed their menus and picked D-friendly foods and got ‘em to donate samples.

I have no idea what kind of turn out we’ll have. I’m hoping for 200. I fear we’ll have two. I’ll let you know.

Now, go out to your local event. Show the power of our voice.

Tuesday, November 13, 2007

A1C road show

Stethoscope. Check.

Blood pressure cuff. Check.

Glucometer. Check.

Test strips. Check.

Disposable finger lancing devices. Check.

Looks like we are ready for a round of home visits. It is a beautiful autumn day. Not hot. Not cold. A taste of impending dry winter is on the breeze as we load up my assistant’s metallic-coffee colored Jeep Wrangler Safari Edition. Such a nice day for a road trip. What’d ya say we skip the home visits and go to Starbucks in Santa Fe? I get a very serious scowl in return. Sigh.

What are we forgetting?

Oh yes. I forgot the A1C machine.

What? You ask.

I pop back into the office and crawl under J’s desk to unplug it. Yep. Our brand-new DCA 2000+ is going on it’s first road trip. The machine is a hair smaller than an traveling typewriter (for those of you under the age of 30 a typewriter is a manual word-processing device that we all used before computers; back when we rubbed two sticks together to made fire to cook spaghetti) and half as heavy. In short: imminently portable.

I tuck the machine under my arm and head to the jeep. Let’s go.

We arrive at our first stop, a licensed day care center. The woman who operates it works longer hours than we do, so it is impossible for her to come to the clinic. Parents drop their kiddos off pre-dawn on the way to work and pick them up after dark on their way home. In such cases, we bring the clinic to the patient. The kids run to great us, “The doctors are here, the doctors are here!”

After getting the mandatory hugs, listen to my hearts, and do I have a fever todays out of the way, we can finally attend to our real patient. I plug the machine into an outlet under her kitchen window and set it on a chair. It flashes the software version on the screen and starts making all its little warm-up noises.

I check our lady’s blood pressure and begin to review her BGL log. I’ve also brought along a Levemir flex pen sample and a script; I might or might not add a new layer of therapy today. Depends on the A1C and sugar log, and of course, the patient’s level of compliance with the original plan.

She starts off with a “confession.” She hasn’t been remembering to check her blood sugar very often. Oh, yes, and about half the time she forgets to take her pills. She’s just soooooooo busy. In three weeks I have seven blood sugar checks. Growl.

OK, here’s the deal. I know you are busy. But how much time does it take to take a pill? What, maybe 15 seconds? And I want you to take two blood sugars tests per day. Now how long does that take? What, maybe 20 seconds? So I’m only asking for ONE MINUTE of your time out of each day to take care of your diabetes. How many minutes are there in a day, anyway? About 1400? I’m not asking for much here.

With a beep the A1C machine tells me she’s ready to go to work. I open the foil package that holds a test kit. Then I open the wrapper to a cartridge. I twist the baby-blue top off of a Johnson & Johnson lancet and hold it lightly to her fingertip. Even the “soft touch” disposable one-shot lancing devices can be pretty aggressive. My favorite two fingers are becoming callused from all the demo blood testing I do at the clinic. If you hold too tightly you’ll hurt the patient; too lose you don’t get blood. Older people have softer skin, but reduced capillary response. Manual laborers have thicker skin. Children have sensitive little fingers and bleed easily. You need to personalize your touch. Her hands are dry and smell like Dawn soap. Did you just do dishes? I snap the trigger. She doesn’t flinch. I put gentle pressure on her finger and a bright-red drop of blood wells up. I touch the capillary tube on the cartridge to the blood drop. In a flash it fills. I wipe the edge of the tube and hold it up for her to see.

Five million of your red blood cells, I tell her. Then I snap the cartridge into the test kit, swipe the kit down the reader track so the machine can read the bar code, and with a thunkkkk lock the kit into the testing well. I pull the silver foil tab to start the test and close the test well door.

The machine starts making happy little coffee-grinder noises. We’ll have our results in six minutes. In her kitchen. This is sooooooooo cool!

On our way out after we were done, I see a huge flat screen TV along the wall. It stops me in my tracks. The picture quality is amazing. Was that here before? She blushes, “no my husband got it. I hate BestBuy!” Huh. It’s beautiful, I allow. “Well, the kids like it,” she mutters.

And A1C machine cradled gently in both arms, I head down her stone steps to the jeep. We’ve got more people to see today. Accurate, on site A1C testing. It doesn’t get any better than this.

Monday, November 12, 2007

Is there a doctor in the house?

So as a kid I was called Willy, which I hated. As a young man I was Wil, with one “L,” just to be different. When I came to New Mexico, the place I worked at already had a Bill. My boss felt it would confuse people to have a Wil and a Bill and asked me to use my middle name. My middle name is my Father’s name. It seemed waaaaaay to weird to use it myself. “So pick a name,” I was instructed. How about Liam? (The Irish diminutive of William). “Never heard it. We’ll just call you Lee.” And so it was.

So my family calls me Wil. My wife Lee. And when I worked at the hospital my name tag said William and everyone shortened it to Bill with out asking me. Bill is my cousin. I got introduced at the clinic as Lee, so that’s what I’m called there.

In short, I don’t know what the hell my name is, and people shouting any of my names as I cross a parking lot are likely to get no response out of me. Probably how that rumor I’m deaf got started.

At the clinic we have these cute little appointment cards, that have a small sticker that can be pealed off an put on your calendar that says you have an appointment with Dr.________ on such a such a date and such and such a time. The front desk fills these out for my patients. So you have an appointment with Dr. Lee on such a such a date and such and such a time.

When I was first at the clinic I was always careful when meeting people to emphasize that I’m not a doctor, nor a nurse, but just one of them with knowledge and experience to share. I think I’m formally classified as a Health Educator. My business card says “Diabetes Coordinator” and my name badge says “Diabetic Educator.”

After I’d been there a couple of months the front desk girl gave me a heads-up that patients were calling and asking for appointments with Dr. Lee. She thought it was a riot. I groaned, resolved to stamp this out, and worried about how my boss, a real doctor, would react to all of this.

It took me a while to realize that the appointment cards were the cause of a lot of the trouble. I also knew that a middle-aged white guy who wears a stethoscope and works at a community health center that serves a minority population was bound to be mistaken for a doctor. (That actually happened a number of times before I worked in Health Care….I must have a doctor-like look. The clerk at my wife’s favorite shoe store once asked me a medical question. I have no idea. “Aren’t you a Doctor?” No, I run a photo lab. “Oh… (greatly disappointed), I thought you were a Doctor...”

So much for my macho globe-trotting photojournalist self image.

But back to our regularly scheduled story….

One day Juanita (nothing like her real name), one of my senior citizen patients, came for an appointment and brought along her five-year-old grandson. She introduced him, “I’d like you to meet Dr. Lee.” The boy peaked out from behind her legs, “Hello, Dr. Lee.”

Crap! Ok so here’s the problem. I work in a Hispanic society, so there are certain rules ya need to follow, even as an assimilated outsider. Manners and respect to elders are a really big deal here. I chose not to correct her because I didn’t want her to look foolish in front of her grandson. I bit my tongue, crossed the Rubicon and let it go. I extended my hand to the boy and said simply, you can call me Lee.

I’ve stuck with that line ever since, with considerable guilt and overall lack of comfort.

Since that time, even patients that know perfectly well that I’m not a doctor have started calling me Dr. Lee. Some to tease me. Some out of respect. Some just ‘cause everyone else is doing it. Yikes. What a mess. One time recently I tried to correct a woman who should have known better. I’m not a doctor, you know. “Oh well, you know so much you ought to be. They should just make you one.” Ummmm…. I pretty sure that it’s one of those things you have to work hard at for a long time. No field commissions in the medical ranks.

I’m thinking I should get an on-line PhD in underwater basket weaving just so I don’t feel like some sort of…. counterfeit? …charlatan? …Imposter. That’s the word. I feel like an imposter. The Unintentional Imposter, good title for my autobiography.

So last week I was meeting with a new Dx. He’d gotten very sick and had gone to ER where they found his blood sugar was like 800 or some such. They kept him for a day or two and sent him home with vials of insulin and scanty instructions.

Hi, I’m Lee. I understand you’ve had a crappy week. I want you to know it’s all uphill from here on out. Soon you’re going to be feeling so much better you won’t be able to believe it. You can live with this, and it really isn’t that hard.

“Everyone in town has been telling me I should come see Dr. Lee for my diabetes,” he told me, “but I was expecting an Oriental Gentleman.”